Is genetic discrimination in the workplace affecting you? The ability to conduct genetic testing is one of the great benefits of medical research in the modern age. Today we can have access to information about our genetic predisposition for specific diseases or health problems and take action, if needed, to give ourselves and our children the best chance for a healthy and long life. But along with the benefits of progress come risks, including genetic discrimination in the workplace. If you participate in a genetic research trial, or get information from a genetic test about your risk of disease, does your employer have access to that information? Can your employer even deny you a promotion or otherwise discriminate against you because of it? There are laws that protect you and your genetic information from discrimination. Find out more about genetic discrimination in the workplace below.
This page will answer the following questions:
The legal definition of Genetic information under the Genetic Information Nondiscrimination Act (GINA) includes information about an individual's genetic tests and the genetic tests of an individual's family members; information about the manifestation of a disease or disorder in an individual's family members (i.e. family medical history); An individual's request for, or receipt of, genetic services, or the participation in clinical research that includes genetic services by the individual or a family member of the individual; or the genetic information of a fetus carried by an individual or by a pregnant woman who is a family member of the individual and the genetic information of any embryo legally held by the individual or family member using an assisted reproductive technology.
Genetic information discrimination is any adverse employment action or unfair treatment taken against an employee based solely on their genetic information. This can include refusal to hire, firing, limiting work schedules, denial of promotion opportunities, or any other action which would preclude an individual from receiving the same treatment and opportunities as other employees.
GINA was passed May 21, 2008. The Act prohibits group health insurers from denying health coverage to a healthy individual or charging that person higher premiums bases solely on a genetic predisposition to developing a disease in the future. Title II of GINA addresses genetic discrimination in employment.
GINA protect employees by barring employers from using an employee's genetic information when making employment decisions, including: hiring, firing, job placement, or promotions. Even when genetic testing reveals that you are more likely than most employees to develop a specific disease, GINA prohibits your employer from making employment decisions (listed above) based on that information. The manifestation of a disease or disorder is also considered genetic information under GINA; your employer is therefore unable to use it against you when making employment decisions.
GINA also makes it unlawful for any employer to limit, segregate, or classify their employees based on their genetic information in any way which would deprive an employee of employment opportunities or otherwise affects their status as an employee.
While it is generally illegal for your employer to access your genetic information, there are six narrow exceptions as listed by the EEOC. (http://www.eeoc.gov/laws/types/genetic.cfm)
Employers can use genetic monitoring to measure the biological effects of toxic substances in the workplace only if the employer satisfies all of the following conditions:
Yes, labor unions are subject to the same genetic monitoring restrictions as other employers.
Yes, any genetic information gathered is required by law to be kept in a confidential medical record. Any employer, employment agency, or labor organization which possesses genetic information about an employee or member is required to maintain genetic information on separate forms and in separate medical files.
An employer, employment agency, or labor organization can only disclose genetic information to:
Yes, GINA protects employees from workplace harassment. Under GINA it is illegal to harass a person on the basis of their genetic information. This includes making offensive or derogatory remarks about an applicant or employee's genetic information or family medical history.
No. Under GINA it is illegal to fire, demote, harass, or retaliate in any other way against an applicant or employee who files a discrimination complaint.
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